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Crimpergirl
Sport climber
Boulder, Colorado!
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Topic Author's Original Post - Nov 4, 2011 - 01:57pm PT
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One of the best things about the taco is the wide range of experiences the tacos here have had and their ability to share about it.
Thought I'd put it out there to give the latest update for those who've known. And to hear others' experiences since I finally have some answers.
At the end of July, I got grounded by the docs. Not allowed to do anything but walk slowly (later I was told I could ride my bike easily on flats but turns out I've not been able to do so. I feel crappy). This grounding came along with a fast trip to the hospital - cardiac ward. Seems my heart was very unhappy with me and the ekg pointed to (among other things) my LAD (aka widowmaker) being cut off from blood. The outcome of this is not good. :)
Seriously, me? I'm a youngin! (46 then. Okay, in denial about being young). I have low blood pressure. I have a low resting heart rate. I eat healthy things. Never smoked. Don't do drugs. Exercise a lot. I should be the poster-child for healthy hearts...except one very important factor: genetics.
50% of the females in my family have died in their 50s from heart related ailments. The ones that lived longer, lived with major heart issues.
Ugh.
Well the angiogram demonstrated that I am "clean as a whistle." Good news, but that began a long time of the cardiologists (and pulmonologists and others) trying to figure out what was going on. Very frustrating. At one point I was told it must have been a virus. Another guy said I should learn to breath using my diaphragm and it's be better. :/
Just two weeks ago, we got the answer...run of the mill arrhythmia. At this point, I only know it's a long R-P Paroxsymal Supraventricular Tachycardia.
I scheduled my electrophysiology study for Dec 12th where hopefully they'll recreate the problem then kill it via ablation.
I'm sure others out there have dealt with this or are close to someone who has. How'd it go for you? Recovery? Feel way better afterward? Ain't skeered, but curious as to what your symptoms were and how you are now. Thanks in advance.
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matty
Trad climber
under the sea
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Best wishes for you Crimp!!!
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Crimpergirl
Sport climber
Boulder, Colorado!
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Topic Author's Reply - Nov 4, 2011 - 02:04pm PT
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It's all good. Thanks for the nice thoughts. Really looking forward to feeling better and being in some of BN's Trip Reports again! We'll be heading out to Red Rocks and J-Tree of Thanksgiving time. Not sure what I can do climbing wise. I know I'll be birding like a maniac for sure. :)
Oh, and thanks DMT. :) You made my day. :)
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zip
Trad climber
pacific beach, ca
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DANG!
Sorry, and positive vibes sent your way.
makes my medical problems look real small.
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the Fet
climber
Tu-Tok-A-Nu-La
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Sorry no info, just joining the chorus of best wishes to you.
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Ed Hartouni
Trad climber
Livermore, CA
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have had an arrhythmia since my late 20's...
first noticed something weird with my heart beats, studied up on it, went to the doc
Doc: "what's up?"
Me: "I have an arrhythmia"
Doc: "that's a very specific diagnosis... we'll see"
he puts me through a stress test, takes blood, etc, etc, tells me to come back a week later
Doc: "you have an arrhythmia"
no sh#t...
Doc: "just don't worry about it"
basically, he read the same lines out of the book I was studying about it too, what he didn't mention to me was that the docs have no way of telling with my type of arrhythmia whether or not it's a bad one... so the recommendation is not to create anxiety over something they don't understand...
so far, I haven't died yet....
...hopefully you will figure out a way to live with it!
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Alan Rubin
climber
Amherst,MA.
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Thinking of you. Hope they figure this out for sure quickly so that you can start getting going out there again soon. Best wishes. Alan Rubin
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Crimpergirl
Sport climber
Boulder, Colorado!
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Topic Author's Reply - Nov 4, 2011 - 02:13pm PT
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If the study and ablation work, (very good chance of that), then a week later I'm free to do whatever I want!
Currently I can't do anything since I've been so symptomatic. Upon exertion, I start passing out. This is not a quality one wants in their belayer. :) And it makes riding the road bike problematic too. :) Four steps and I can't speak - too winded. And this damned invisible elephant on my chest. Not fun.
But seriously, I appreciate all your thoughts. I'm not skeered or worried. It'll all be okay. But curious how anyone felt post-ablation. The new Bike Tour of Colorado route was released last week. I intend to be on that tour!
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Jaybro
Social climber
Wolf City, Wyoming
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Welcome to the club! I have one of those 'different drummer' hearts as well.
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Mikemcee
Social climber
Mill Valley, CA
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I had an ablation about 6yrs ago for A-Fib...totally got my life back.
Email me if you want more info but I have nothing but positive things to say about that procedure.
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Doug Robinson
Trad climber
Santa Cruz
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Sorry to hear this Crimpster.
Somehow it reminds me of Alan Bard channeling an old cowboy: "I got a hitch in my gitalong."
Enjoy the birds, breathe deep, admire our so-cool little planet. And of course I can't resist the rare chance to recommend that you be a good little belay slave.
And bring us back some good news, OK?
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Crimpergirl
Sport climber
Boulder, Colorado!
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Topic Author's Reply - Nov 4, 2011 - 02:18pm PT
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Hey Mike - were you awake for the study part of the EP workup? I do dread that. I am a big fan of drugs and not remembering. Did you get your life back pretty much right away? I like your story. :)
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mike m
Trad climber
black hills
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Good luck Crimpie, even if your physical heart isn't working too good we all know you have a good other heart.
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survival
Big Wall climber
A Token of My Extreme
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Ahh life challenges.
There be many perils on the way to Nirvanna.
survival
Seriously, hang in there. I just saw a little news thing on Barry Manilow and his arrhythmia. His treatment has worked out very well and he has good quality of life.
Herbal remedies for arrhythmia include extracts, salves, tablets, teas, capsules, or tonics made using hawthorn (Crataegus gen.) and calendula (Calendula officinalis); Cornflower (Centaurea gen.); Lemon Balm (Melissa officinalis), Motherwort (Leonurus cardiaca), Selenicereus Grandiflorus, Valerian Root (Valeriana Officinalis); Horehound (Marrubium Vulgare) flowers; celery, garlic, angelica, parsley, and fennel.
Natural treatment options for arrhythmia include fish oils or including cold water fish in the regular diet or fish oil capsules; flax seed oil since it contains omega 3 fatty acids; magnesium-rich diet or magnesium supplements; carnitine in small doses; resveratrol an extract from wine and grapes; potassium supplements; berberine and berbamine too are considered good for people suffering from arrhythmia; adenosine; and bergenin.
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steelmnkey
climber
Vision man...ya gotta have vision...
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Hey C! Sorry to see you down. Hang in there!
Good to see you studying hard for the upcoming exam!
We'll be crossing fingers and sending the best vibes that way that we can muster.
Look forward to seeing you soon!
Paraphrasing the line in The Last Samurai, I look forward to a good conversation!
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Reilly
Mountain climber
The Other Monrovia- CA
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Sounds like you're getting a good workup, finally. That's a pretty darn
good diagnosis compared to what the rest of the cloud's lining could be.
ALL THE BEST!!!!
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ydpl8s
Trad climber
Santa Monica, California
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There are so many variations of Afib, my wife has it, genetic (her brother's got it and her dad had it). One thing I do know is that she has really had to do research on every kind of medicine she takes, increased heart rate is a side effect of a ton of medicines. She has migranes and about 99% of the really effective medicines cause her fib to start up and feel like you do. She finally had to go to a compounding pharmacy to get some migrane medicine that the big drug companies don't sell anymore.
I'm sure you'll do all the right things, just remember, ask questions, be your own advocate! No one will take as much time to look into things as you can (except BN of course).
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JEleazarian
Trad climber
Fresno CA
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Very sorry to hear this. My wife's family has had to deal with bad genes, too, as has one of my former law partners (who was also a climbing partner of Frank Sacherer!), so I've been touched by that. I have one other friend whose condition sounds similar to yours, and whose results (from 20 years ago) restored her to the outdoors, but I'm reluctant to go into detail until I can get her permission.
Meanwhile, you'll be in our thoughts and prayers, and hope that Dec. 12 brings complete relief.
John
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survival
Big Wall climber
A Token of My Extreme
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As an NBA all-star player, Jerry West scored more than 25,000 points, received nearly 5,400 rebounds and is credited with about 6,200 assists. As the general manager for the Los Angeles Lakers, Jerry West built an indomitable team and won seven championships. But as a patient with a chronic disease, the symptoms and eventual diagnosis of atrial fibrillation (AFib) brought greater challenges.
Undiagnosed during his 14-year playing career, West had symptoms but was unaware that they were related to AFib. “I was experiencing all of these warning signs, but instead of speaking up, I just ignored them. My doctors used to say that I had ‘an extra beat in my heart,’ but that was the extent of it.” Ultimately, West was not diagnosed with AFib until age 42.
“It’s like this condition was some sort of secret that people either didn’t understand or didn’t discuss. Meanwhile, I was walking around feeling like there was a ticking time bomb in my chest.”
In 2007, West retired from professional basketball to focus on managing his AFib and regaining control over his life. “It took me a long time to understand what I was dealing with,” said West. “I thought it was normal to feel anxious all the time, and I didn’t realize the impact AFib was having on my health and well-being.”
To raise awareness about the chronic, progressive nature of AFib, West partnered with AF Stat™: A Call to Action for Atrial Fibrillation, a collaboration of health care leaders and organizations working to improve the health and well-being of people affected by AFib. AF Stat, an initiative sponsored by sanofi-aventis, is raising awareness of AFib and is calling for and helping promote a change in attitudes and behaviors to enhance AFib understanding, diagnosis and management.
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Norwegian
Trad climber
Placerville, California
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well,
my pops needed a pacemaker at 35.
im 37 and im not shying away from the upper stress
threshold.
is how i know to live, only.
keep feeling however you do each day.
let all of them have their say:
worry, fear, elation, gratitude, love, hate, anger, hope.
all of these emotional critters leave scampering footprints
all over souls everywhere, and its better that they be allowed
theirs journey.
i hope you hang on to yourself tight while bumping through
this struggle.
cheers and encouragement, crimpgirl.
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