Malignent Melanoma Survivors who climb

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yllw2lip

climber
Orange, CA
Feb 7, 2011 - 01:53am PT
Paul... you crack me up!
Quote: "Fire hats & mustaches popped into view from the corners, like whack-a-moles in some acid trip."

You always had a way with telling stories, even when you are describing an incident where you were in the worst pain of your life you insert that awesome sense of humor that you have. I still can't believe you had the prescence of mind to whack your head on a tree limb on the way down to re-orient yourself to not get killed when you landed!!! OMG! You are my hero, Nolan may be yours, but you are mine! And God bless Nolan for being yours :)

Glad to hear another trial is coming your way, and that the pain eased a little bit. If you have to come to L.A. at least you will be closer to me and I can give you a physical visit. You look much better in the pics you posted than the last time I saw you, that's good to see.

Love you lots and lots! xoxo to Ruth,
Anna (the lil' sis)
philoselfizer

climber
Feb 8, 2011 - 11:02pm PT

Paul,

i had known about your back injury, but not the HOW of it - heavens to Murgatroyd, you must be part cat.

Well, i've observed that cats never give up when they want to achieve something. They stay focused...they keep striving - just like you are doing!

Hope your spirits are still climbing - warm hugs to you & Ruth.

Andrea
SCseagoat

Trad climber
Santa Cruz
Feb 9, 2011 - 08:32pm PT
Hi Paul, As I recall Thursday is your next milestone for a new trial. Let us know how it goes. I know you checked yourself outta the hospital ... I hope you have been able to manage the pain while home. Sharing a virtual cup of tea with you! Susan
Disaster Master

Social climber
Born in So-Cal, left my soul in far Nor-Cal.
Topic Author's Reply - Feb 10, 2011 - 08:05pm PT
Hi all. We just rolled in back from hospital. Then Ruth rushed off to teach all evening. I don't know how she does it.

I have been vomiting and failing to keep food down. Though it is getting slowly better. They pumped me up on too many drugs while hospitalized. Went form in pain to nauseous. It is a choice, it seeems, and I must choose pain. I can't eat with the hurls all the time from the pain meds. The pharmacy kept arguing with us, because that's how much narcotics the docs said I needed.

I took over. I cut back some things, changes others, with the goal of eating again, damn the pain. So a few days of heroine like withdrawals and now I am trying to eat again. Mostly applesauce so far. I am now at my lightest. Lost close to 15 pounds this past 2 weeks.

So the good news is we qualify (except for one last thing that should be OK) We could not get the approval back before the drug company closed today though. So even though the drugs were in the room, I did not get them.

We will have to go back again to get the meds, unless some other wrench is thrown in the works. I need this bad. Without it the groin monstor is twice as big as a month ago, and is starting to outsize my real "Junk". Quite disturbing and excruciatingly painful.

I am so tired of not being able to contribute to the income of the house. Ruth is working herself ragged, Though she will say she is fine. Then she has to do most things for me.

When I was first diagnosed with this BS we set up an account that people could donate to. I feel the need to ask again for charity. This is not easy and entirly my idea this time around. But we need a little breathing room.

I have a paypal that can be donated to. This screen will tell you how:https://www.paypal.com/cgi-bin/webscr?cmd=_flow&SESSION=ao8zNg5u-6mOU3khaxSR1GR8pEpy-J9CfIMY3f3vmcYrwa16VLrxJsAxZo4&dispatch=5885d80a13c0db1f8e263663d3faee8df1d2b5c147af55b8d54f2944c97d2a2a
The email to use when asked who the $ is for is sticksandstones@cliffhanger.com.

I hate to do it, but could use any monetary help we can get.


We will see what happens with the drug, when I get it. I feel it may be one of my last chances.

Dumpster-diving for love,
Paul
Gene

climber
Feb 10, 2011 - 08:52pm PT
Good to hear from you, Paul. Thanks for the update. Praying for the buzzer-beating three pointer for you. Keep us posted.

And, damn Dude, what a great lady you have.

Kick Ass,
g
yoginigirl

Social climber
Eureka
Feb 10, 2011 - 09:31pm PT
Paul ~ I went to the paypal and it gave me an error message. I did figure it out though.

I missed you last week and sent you both love as I drove by. I hope that everything comes through tomorrow for you. Please, please look into hospice, if nothing else they can have volunteers take care of laundry and cooking and the minutia details that just take time and energy. There is no cost to you ever and it does not mean giving in, it is just a form of support. Much love to you and Ruth and I will pass the word up here.
SCseagoat

Trad climber
Santa Cruz
Feb 10, 2011 - 10:05pm PT
Hi Paul Glad to hear that you are in the queue for the next trial. Is it possible to send me a private email with your snail mail addy? I've not always felt comfortable with paypal.

Thinking alot of you and Ruth. I'm with you, I hate the feeling of needing to have help, especially hard for us independent folks...however I have been on the other side of the equation and felt it left me with life lessons and experiences that have profoundly enriched my life.


thanks, Susan
Disaster Master

Social climber
Born in So-Cal, left my soul in far Nor-Cal.
Topic Author's Reply - Feb 10, 2011 - 11:36pm PT
"Ask and you shall receive." True tonight. Thank you to those who responded to my plee for assistance. Cancer is expensive!

Jen:
Was I still in hospital when you came by? Sorry we missed each other. Very crazy here, of late. Love you all up in the Humboldt fog!

Susan:
Your virtual tea always makes me smile. How are YOU doing?

Everyone else, rock on.

Perhaps the pills will reach me tomorrow.

Wish I could do something deserving for Ruth. It's Valentines and birtday month. (Love you Ruth;)

My breath and meditation helps me more than all the diloted morpine they inject in me. I have my mind back. Now if I can get my stommach back I'll be on my way.

Chin up, this sh#t is on-site!
Paul


Jan

Mountain climber
Okinawa, Japan
Feb 11, 2011 - 12:17am PT
Thanks for the update.Hell of a way to lose weight!
All those drugs slow down your breathing so good thing you know how to do that yourself. I sent you an email.

SCseagoat

Trad climber
Santa Cruz
Feb 11, 2011 - 11:22am PT
Hi Paul, I'm doing well. Actually I am at Stanford right now, just got blood drawn, waiting for lab results, then on to chemo today if blood work good. You sound better. Thank goodness. The "blood drawer" today was a nasty prick (nice lady but bad technique). Maybe I will reconsider being an early morning patient! And guess what, I have a real cup of tea in my hand...so clinking virtual tea mugs wid ya! Susan


edit: No go for chemo today, my wbc too low. Must wait a week, ARRGH, this pushes my completion date back to mid March. Who in their wildest dreams would have thought I would embrace chemo rather than being turned away from it? Sharing something alot stronger with you than a virtual cup of tea this time. Hopefully you get your pill today. Susan
Lynne Leichtfuss

Trad climber
Will know soon
Feb 11, 2011 - 11:32am PT
Would you email me your snail mail address thru my email here on ST. My heart hurts for all you two are passing thru right now on this planet. Huge positive thoughts, prayers and love from lynne.
Disaster Master

Social climber
Born in So-Cal, left my soul in far Nor-Cal.
Topic Author's Reply - Feb 11, 2011 - 05:10pm PT
JUst got the call...

Approved! But, yeah, I know, BUT...

I have to get to the hospital before end of business today! Or else.

Or else my 72 hour "Dosing window" will pass on sunday (they are not open) and we would have to do the Doc appoint and approval all over again.

Good thing
I'm half tigger
so I can bounce
through the hoops!

Off for the pill,
still feeling ill...
throbing pain
in my groin
and my head.

Thanks to Ruth,
My Love,
We cross the
Golden Gate,
above the sea,
heading for
more days
of you and me.
Gene

climber
Feb 11, 2011 - 05:29pm PT
Great news, Paul!

I have to get to the hospital before end of business today! Or else.

Log off and get moving!!!!!!!!!!!!

g
SCseagoat

Trad climber
Santa Cruz
Feb 11, 2011 - 06:09pm PT
Yeah Yippeee...I am SO happy for you. Now become the incredible shrinking tumor man. I am so happy for you and let this one do it's magic.



I got turned away from chemo today because my wbc's too low. Oh well, I return next Friday. I'm not in pain or discomfort (well unless I get an infection I guess!) but now I won't be done until mid March.

Screw the virtual tea...tonight it's clinking the beer bottles! Here's to you! Susan
neebee

Social climber
calif/texas
Feb 11, 2011 - 06:12pm PT
hey there say, disaster master, and SC--still rooting and praying for you both, as you seek to tackle these awful trails, daily...

may victory come... and in ways that you will cherish, one day...

god bless...
:)
Gene

climber
Feb 11, 2011 - 06:14pm PT
Thinking of you as well, Susan. Cheers!

{Clinking virtual beer mugs.}

g
Aunt Helen

Social climber
Klamath Falls, Oregon
Feb 11, 2011 - 07:07pm PT
Bounce Tigger, bounce.

Good luck for this one.

Cousin, Helen Humphrey Traylor
Disaster Master

Social climber
Born in So-Cal, left my soul in far Nor-Cal.
Topic Author's Reply - Feb 12, 2011 - 12:41pm PT
New super drugs are in the house and I have started taking them. Lets hope for the best, fast....
Kalimon

Trad climber
Ridgway, CO
Feb 12, 2011 - 12:46pm PT
Good Luck Paul! What an ordeal you are going through . . . our best thoughts are with you.
Jaybro

Social climber
Wolf City, Wyoming
Feb 12, 2011 - 12:47pm PT
oh yeah, great to hear!
"The incredible shrinking tumor man" love it! should be a T-shirt.


Just talked to a friend getting a biopsy yesterday, pretty darn young compared to most of us here....
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