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LilaBiene
Trad climber
Technically...the spawning grounds of Yosemite
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May 14, 2019 - 06:25pm PT
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I can't believe I didn't think to look for a Lyme thread here. :)
I was bitten in PA or NJ around 2007, but my then GP dismissed it as a spider bite. It took 11 years and 30+ doctors to get a diagnosis -- 5 bands on the Western Blot test. My CD57 cells were nearly nonexistant.
I was treated with an antibiotic cocktail (pulsing) for over a year, but began regressing. A new Lyme Literate doctor diagnosed me with symptoms of babesia infection, so have just completed two cycles of an anti-malarial + antibiotic cocktail. Last week I felt just short of dead, which apparently means that the bastard parasites are dying and blowing up my red blood cells in their wake.
I have the red spots all over my upper body to prove it.
The lack of knowledge about Lyme & its co-infections in the medical community is appalling. (More egregious, though, are the doctors that influence insurance policy, insisting that Lyme is easily treated. It's NOT.) Someday, I'll have to go back and count up the number of doctors that offered to prescribe me SSRIs...because women that complain about migraines, joint pain, racing heartbeat, lung spasms, night sweats, inability to sleep, memory loss, exhaustion, etc., they're really just depressed or going through perimenopause. (String of expletives deleted.)
Rant over. So sick and tired of being sick and tired. I really just want to be able to climb again. :)
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couchmaster
climber
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Topic Author's Reply - May 15, 2019 - 03:06pm PT
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Wow, that's a story there Lilabiane. Have you looked into http://lymediseaseassociation.org/ as well? (there is suppose to be a good site to consolidate new info, but I'm not sure if that is it) I have often wondered if it's what took out Jeff Lowe. He certainly lived and played where there were ticks and tick bites. Hopefully now that you have a diagnosis you can work on the fix lilabiene.....Donald Perrys info may be helpful as well but I'd let your Dr know of any "natural" cures if you chose to combine them with your cocktails.
Missed this earlier, first time HealyJ's been forced out voluntarily that I know of. Impressive. Bet there was some serious wincing and groaning when he was reading all this. :-) "Not making any difference here so bowing out."
Regardless: GOOD LUCK AND HEAL UP YOU 2! As much as possible.
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donald perry
Trad climber
kearny, NJ
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May 17, 2019 - 07:51am PT
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LilaBiene please let me suggest the following, note that I am not a doctor.
1. Know that you need to be your own Dr as well as find a holistic Dr, such as Stephen Harrold Buhner, see his book Healing Lyme for starters. Then see Biting Back: How to Naturally Overcome the Effects of Lyme ...Book by Donald Liebell. I do not think your Dr. knows what he is doing because those bugs probably crossed over past the blood brain barrier by now, and to places where antibiotics will not work, antibiotics do not deal with mold, Lyme's best friend.
Why Antibiotics Have Limited Use for Chronic Lyme:
Borrelia is a highly evasive stealthy microbe
Borrelia grows very slowly
Borrelia becomes part of the microbiome
Microbial coinfections complicate therapy
Chronic use of antibiotics disrupts the microbiome3,4
Chronic use of antibiotics disrupts the immune system4
Antibiotics can damage mitochondria inside cells5
Antibiotics can disrupt protective biofilm in the colon6,7,8
People are still searching for solutions.
More here https://rawlsmd.com/health-articles/my-chronic-lyme-disease-journey?wickedsource=google&wickedid=271567568872&wtm_term=%2Blyme%20%2Bantibiotics&wtm_campaign=806966520&wtm_content=42161865019&wickedplacement&wickedkeyword=%2Blyme%20%2Bantibiotics&gclid=Cj0KCQjwt_nmBRD0ARIsAJYs6o3PwMlCc2H1Br3ui6PbvmOFwRxRR_rj-NDNFuQ9AOP5xhOcoFyYAWcaAm-sEALw_wcB
BTW, I do not suggest Dr. Rawls. Too expensive, and not enough power.
2. The first thing I would do is start the Wim Hof iceman breathing 4 times a day. The oxygen will kill off a lot of those buggers. Hot baths, as hot as you can take it for short periods of time kills the bugs as well as helps with the Herxheimer die-off. Be careful though, because the hot baths can be addictive. I have my own SHORT HEIGHT TUB from a horse troth that I fabricated, see photos. 111 F. can kill meningitis if you do it for a day and guarantee it if you do it for a month in my opinion. I try to stay in there for 1/2 an hour. I have not used this new tub yet, in the past I just did 1/2 my body at a time. You need to use ear plugs and drink a lot of water in there and put your head under, and you need someone to watch you and take your temperature. I think I got up to 103 F.
3. Know that no matter what you do, it is going to take around 6 weeks until you see any change.
4. Switch over to natural antibiotics, Japanese Knot Weed and Oregano as mentioned above powder and tinctures do them all day long, that stuff needs to always be in your blood.
4. Get outside and walk around, do not do too much or you will Herxheimer die-off and your joints will swell up like melons.
5. Once you get past the major die off you will be cruising, at this point there is going to be a problem being consistent. If you are not seeing Donald by then you should do so then.
6. Do not eat a lot of fruit, bread, milk, eat a lot of vegetables inducing onions and garlic etc. Some people can not do this because they have no will power.
7. Read everything I wrote.
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