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hashbro
Trad climber
Mental Physics........
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Incredible story and thread Paul.
I've had several pre-melanoma moles excised over the last couple decades and am massively rooting for you and tumor shrinkage. If Lance can do it, so can you bro.
Get well soon!
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 11, 2010 - 10:33am PT
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Hi everyone!
I just started the full dose of RO5185426, the pill formally known as PLX4032. Finally. I had to take a "Drug Holiday" to see how long the half dose they had me on would last in my system. Progress reversed. The tumors grew and my energy left me. Yeah, a "holiday!"
SO I am psyched to get the full dose. If it goes as well or better than the half dose, I should see improvments in the next day or two. We will see.
I am JONESING to get to J-Tree. It is such a healing place for me. But Ruth keeps reminding me we are poor, I have cancer, and she needs her job. Details, details...
IF we can get job, budget and medical issues in sync, we will be in J-Tree for at least a week in the second half of November.
If not... December?
Life tries to get in the way of living sometimes.
Mastering on,
Paul
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nature
climber
Tuscon Again! India! India! Hawaii! LA?!?!
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Nov 11, 2010 - 11:06am PT
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go check your paypal account. maybe it'll help get you closer to jtree.
thanks for the update.
stay strong,
doug
don't forget there is a sushifest in cochise end of this month ;-)
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 11, 2010 - 11:31am PT
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Damn, Nature. Thanks! That's going directly into the back to the rock road trip can.
I keep thinking of your next fest, driving vs. climbing time is the issue.
Thanks again. you rock,
Paul
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SCseagoat
Trad climber
Santa Cruz
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Nov 11, 2010 - 05:33pm PT
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Paul, great news that you are getting back on the super pill. Good to know that it is doing its job. I start chemo on the 19th...a little scared but what the heck. We are also trying to get to Joshua Tree since we missed all our Moab and Yosemite stuff after my Dx. Just needing to work it around all the pokes and jabs....I know you know how that works. I've also become amazed at how different each blood draw can be in terms of the skill level of the person. Mondays draw never felt a thing, yesterday I thought they were sticking me with a rusty hose pipe. So it goes...this healing stuff...stay strong, clearly the full dose is working considering the pics posted earlier. Susan
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 11, 2010 - 05:43pm PT
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Just needing to work it around all the pokes and jabs....I know you know how that works. I've also become amazed at how different each blood draw can be in terms of the skill level of the person. Mondays draw never felt a thing, yesterday I thought they were sticking me with a rusty hose pipe.
Damn straight! I have a port implanted, but it only works half the time. So I get poked in the port, and then in the arm anyway, most times. Each stab feels worse. I am sooo over needles!
Carry on, SC.
Bikram, the guru of the yoga I do told me once "Life is like ocean waves. When I am in the trough of the wave, in a down place, I am happy. Because I know I will soon be on the way up again! It is when I am at the crest of the wave that I say 'uh, oh' because I may soon be going down again."
-Paul
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SCseagoat
Trad climber
Santa Cruz
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Nov 11, 2010 - 07:38pm PT
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Love the wave analogy! Esp. living in Santa Cruz I have always referred to dealing with the "waves". I hope to get back to Bikram soon. They opened a new studio a mile from my house just at the time of my dx. Incision healing still a little too tender for full on hot yoga. I think about another 2 weeks. At least after my chemo starts I won't need to worry about the sopping wet hair after yoga!
Stay strong! Make them keep giving you the good pills! Do they hand it to you in one of those little paper cups which you then see the billing for the $25 paper cup? Yeah, medical fun and games.
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JOEY.F
Social climber
sebastopol
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Nov 13, 2010 - 11:53pm PT
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Had the great fortune to meet Disaster Master and Ruth at Vertex today after the yoga class.
What you read is what you get.
Smiles, enthusiasm, friendliness, and laughs.
Didn't meet Gym Birdwall, had to stay in the car, prolly couldn't keep up with these two, dang...
Thank you, Paul and Ruth.
Joe.
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Gym Birdwall
Gym climber
The "Koop"
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Nov 14, 2010 - 08:57am PT
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Wow, Joe. That pic and post are like a Disaster Master bigfoot sighting!
(I was sleeping it off in the truck. Too much grey goose vodka.)
-GB
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 20, 2010 - 04:48am PT
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Oh my God, I am starting to feel like a living human again!
After a week or so on the full dose of PLX4032 Tthe tumors continue to shrink. I have some wierd side effects, but nothing I can't LIVE with. I have been sleepy at odd times and I forget where I am, what I am doing on occasion...Could be the medical pot though...what was I saying?
Been taking more hot yoga classes. Feel almost good enough to start teaching yoga again.
Tonight Ruth and I went to the gym. I never thought I would say this, but thank god for plastic. It gives me the outlet to train, recover. I climbed 14 TRs in two hours, in between belays for Ruth. Sent 5 5.10a's and 5 5.10b's. Not bad for someone who could barely walk a month ago!
NEVER, EVER GIVE UP! THERE IS ALWAYS HOPE, UP TO THE LAST BREATH. FIGHT!
I am looking into starting a non-profit called C.R.A.C.Climbers Rise Above Cancer. Perhaps a fund / awarness raising climb in the spring???!!
Hard to kill
& even harder
to keep down.
I bounce back
& keep comming around.
_Paul H.
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Jello
Social climber
No Ut
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Nov 20, 2010 - 05:15am PT
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Paul, you are a total, high-class inspiration! Thank you for being...
-JelloMasterThanksDisasterMaster
EDIT: I would be happy to join your band of CRAC climbers.
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 20, 2010 - 05:25am PT
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Absolutly!
As Founder, I have member number #1.
Jello is now charter member #2.
#3......SCSeagoat?
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Jello
Social climber
No Ut
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Nov 20, 2010 - 05:32am PT
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Charter member #2. I like that a lot...
-#2Jello
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Jaybro
Social climber
Wolf City, Wyoming
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Nov 20, 2010 - 08:54am PT
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Maybe get that Blackbird in there.
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 20, 2010 - 10:32am PT
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Remember, you need not HAVE cancer to become a member of CRAC. In fact, I would prefer it over cancer positive!
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SteveW
Trad climber
The state of confusion
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Nov 20, 2010 - 11:43am PT
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You are an inspiration, Paul!
My prayers are with you.
Steve
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 20, 2010 - 01:47pm PT
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I have been reading past posts with "cancer" in them. So much of it on ST! Over 3,000 cancer related posts.
More CRAC automatic memberships go to the following. (Please update with your status):
-Anstasia
-Dirtineye
-Kris (cosmic's son)
-Blinny
-RickyD
-Blackbird
This is just from memory. Quite frankly, the names are too numerous to remember...
I have another thread gathering all the ones I have found together: http://www.supertopo.com/climbing/thread.php?topic_id=1322403&tn=0#msg1323291
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nita
Social climber
chica from chico.. I shall call you..mini moo.
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Nov 20, 2010 - 02:14pm PT
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I know Funkness was fighting cancer...don't know him and i just noticed he has not posted since 2007... I remember him from the F*#k cancer thread..
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SCseagoat
Trad climber
Santa Cruz
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Nov 20, 2010 - 02:42pm PT
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Yes Yes....I want to be a charter member! (Single digit member number if possible as my major cancer marker, the CA125 blood antigen when in the single digits is what we shoot for) I just had my first Chemo yesterday. So far so good. I did not have allergic reaction to any of them (thank goodness) and my blood counts were all good going in. I know chemo is cumulative so it may get rougher...but I'm there. My dear little climber friend Tiffany,(who has won many world champtionship) sent me this quote yesterday "If you are going through hell, keep going" Churchill. Yes, I will keep going through this hell until I'm going through my next hell on granite (well probably plastic first). I'm not quite cleared for gym climbing yet (I'm only 5 weeks post surgery), but I think within a couple weeks I can make it to the gym. Just need to monitor the chemo fatigue and keep lots of hand sanitizer on hand.
Thanks Paul....you are so great. We hope to make it to the Donni event in Berkeley on the 5th; perhaps you will be there? By then my hair will be getting pretty skimpy so I might be the only one with a beanie on all night...well maybe not since it is a climbing event!
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Disaster Master
Social climber
Born in So-Cal, left my soul in far Nor-Cal.
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Topic Author's Reply - Nov 20, 2010 - 02:52pm PT
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Oh, I will be at the Donini show with Ruth. Welcome to my new club! Good to hear so far so good with you, SC.
I am sure you are an inspiration to many people as well.
-DM
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